Oregonians on Medicaid Will Soon Access Lifesaving Gene Therapies at a Fraction of the Cost

Oregonians on the Oregon Health Plan (OHP) will be able to access affordable, lifesaving cell and gene therapies affordable, lifesaving cell and gene therapies from January 1, 2026, as a result of the state joining the Centers for Medicare & Medicaid Services (CMS) initiative.

 

Access To Cell & Gene Therapy In Oregon

As part of a multi-year effort with CMS aimed at negotiating lower costs for innovative treatments, Oregon is among 35 states that have applied to join the CMS initiative in 2024.

The Cell and Gene Therapy Access Model program aims to enhance access to transformative treatments for Medicaid recipients with rare or severe diseases by reducing the costs for participating states.

CMS will negotiate agreements with pharmaceutical manufacturers on behalf of states.

Cell and gene therapies —single treatments with the potential to transform lives by addressing the underlying causes of diseases, alleviating symptoms, and halting disease progression —can be challenging due to the high costs involved.

Lower-cost therapies for people with sickle cell disease, a genetic blood disorder affecting about 120,000 Americans, of which around 800 reside in Oregon- mainly within Black, African American, and Hispanic communities will be the initial focus.

The average lifespan for people living with sickle cell disease is 20 years less than the national average.

Cell and gene therapy pricing will enhance access to innovative treatments, improve health outcomes, and reduce healthcare costs.

The treatment will be linked to specific outcomes for Medicaid members and seeks to minimize the burden on state Medicaid programs.

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  1. T Gabe says

    So did I just read this correctly?… The state signed up for a VERY EXPENSIVE PROGRAM, so EXPENSIVE the actual cost was not mentioned, but the focus is mainly for some 800 Black Oregonians with Sickle Cell Disease out of the 4,500,000+ Oregonians that reside in the state, all of the taxpayers will have to pay for these 800 people that obviously do not work pr they wouldn’t be on O.H.P. in the first place… So it’s not like if their lives are extended an additional 20-years we would receive 2p more years of rax payments from these 800 people sonce they aren’t working, black individuals on State assistance???…. AND WHY IS THIS A GOOD THING??!!??

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